Caveat: Filling out the forms…

It’s Tuesday morning in the bush-adjacent highlands of Far North Queensland. Yesterday wasn’t quite as productive as I’d hoped.

I had a good meeting with Donna at Carinya, which is the one care facility where we’d already gotten the ball rolling last year, and which Ann had actually approved of, for a spare moment or two before later accusing me of wanting to lock her up. But the upshot of that meeting is that she’s very pessimistic that a permanent space will become available in the timeframe that we need. So consequently, we need to broaden our search.

I had a meeting with a substititue social worker (“discharge nurse”), Tanya, at Atherton Hospital. The main person in that role, Peter, was off. Hopefully I’ll meet with him soon – I’ve had some positive interactions via email with him. We got the name of two companies that each run multiple facilities down in Cairns metro. I made some calls but so far all I have is an intimidating pile of paperwork and applications to fill out, no appointments to visit anything yet.

Tash came by the hospital again, and Ann seemed more alert and… well, not “happy” but at least less grumpy, about things.

I decided to leave earlier in the afternoon, to avoid ending up back at the house after dark. So I came back to the house, found something for dinner for myself, and was a bit of a vegetable for the rest of the evening.

Here’s another wallaby from mom’s driveway.

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Caveat: Slightly slower

It’s now Monday morning, 6 AM at my mother’s house (sans mother) in Far North Queensland.

Yesterday was a much less busy day, and I finally slept “normally” (whatever that is) last night. I’m looking forward to experiencing jetlag again after the trip back home to Alaska, in 2 weeks!

It being Sunday, I didn’t have much I could do as far as navigating any bureaucratic hoops. So I basically hung out with my mom at the hospital. I think one issue is she struggles with boredom – but she’s got enough “broken” in her mental processes that she can’t seem to figure out how to solve that. I tried to just chat with her, though it’s mostly me doing the talking. I talked about the store, my regrets about buying the store, my issues caretaking for Arthur… I told her that at least she sometimes laughed at my stupid puns and jokes, which Arthur hasn’t done for years, now. My humor relies on language play, and his language interpreter is mostly broken. Ann seems to have her humor in tact – she just struggles to retain a train of thought over any amount of time whatsoever.

We called her brother Alan (my “other” uncle) and he talked for a while via the phone. She listened but didn’t participate much. Her friend Karen came by and brought her food she liked, so I saw her eat more than I’ve seen her eat until now. Then later her friend Tash stopped by, too. Tash has been the most supportive of my mom’s friends over here, and I feel very grateful for all that she’s done. It’s clear how much she genuinely cares for mom, and she adopts a kind of parental role with her that I can’t pull off – I manage it better with Arthur. It probably comes in part with long familiarity.

Today I’ll drive back into Atherton and focus on seeing where things stand with the one care facility where we’d already gotten the ball rolling last year. I’m not super optimistic that that will work out. Tash pointed out yesterday that the nursing home / care facility in the region is quite terrible, with hundreds of people on waiting lists. So the “overflow” of people like my mother end up being hosted long-term at hospitals, which can’t be financially good for the government, footing the bill. Yet there seems to be little being done to actually create incentives (social, financial, whatever) to make for more slots in care facilities. The difficult, unpleasant news about this for us, is that Ann may end up spending the medium term at Atherton Hospital (minus a “respite” which she’s already scheduled for at the Carinya facility, but that’s a short term thing with no guaranteed transition to long-term).

I’ll report more later.

Here are some pictures.

A wallaby at my mom’s property.

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The Atherton Hospital where I’ve spending much of my time.

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Caveat: Poem #3082 “The obstruction”

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The beast was standing, quite aloof,
 it issued challenge to my path.
And birds were squacking, giving proof. 

The beast was standing, quite aloof.
 It lowered head and moved its hoof.
But then it bored. It felt no wrath.

The beast was standing, quite aloof,
 it issued challenge to my path.

– a triolet. Events which took place in my mom’s driveway yesterday.

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Caveat: Telstraumatized

Now it’s Sunday morning, 5:30 AM, in Ravenshoe, Far North Queensland. Yesterday was a long day.

I started out with some grocery shopping for myself and a bit of breakfast and then I tackled the phone problem. I went to the Telstra store in Atherton and discover that yes, it’s Telstra’s fault. In some pique of misguided technology policy (for which Australia is notorious), they basically reconfigured their national cell network in such a way that MOST international phones don’t work correctly. Including mine. So those of us visiting the country “roaming” with our own counties’ mobile providers are screwed. If you have a brand-new iPhone or Samsung you might sneak by, but anything older than a year or two isn’t going to succeed. I don’t really get what they’ve done, something in how 3G vs 4G network traffic is routed, but I was in the position of a) buy a new phone and try my luck with switching my US sim card into it, or b) buying a local pre-paid phone with a new phone number.

Option “a” terrified me – I’ve had such horrendous experiences with switching sim cards to new phones even within the US that I decided not to risk. If anything goes wrong, I’ve lost my AT&T service completely, until I can get AT&T customer service (excuse me, what is this?) to help me fix it. So bought an Australian prepaid phone. If anyone wants or needs my Australian phone number, I’m happy to share. The phone itself, being a bottom-of-the-line cheapo, isn’t “portable” and worse than my current Motorola. My intention is to just leave it here when I leave, and I, or someone else visiting, can pick it up and hopefully get some use out of it on future visits.

This whole process was mind-numbingly slow. The Telstra shop was too busy for the level of staff it had, and their way of coping was to prioritize those clients who had previous appointments. Which I didn’t have. So helping me out was squeezed between 5 or so other clients, in spare moments. I was in the shop for almost 2 hours.

I had flashbacks to my first month in Korea, when I’d gone there to teach, in September, 2007. I was sitting in a phone store there, while they plodded through the bureaucracy of getting a new work-visa-holder (me) a new mobile phone. It was a lot of bureaucracy, and possibly the staff wasn’t terribly competent. Danny, my new boss (the principal at the first school where I taught – a contract that only lasted about half a year since he sold his school and my contract had to be re-done under the new employers) was watching me as I sat with him in the shop, waiting for them to get my phone set up. I vividly remember, he remarked, “You are weirdly patient” (his English was native, he’d grown up partly in the US).

I asked him what he meant by that. He explained that most of the foreign teachers he’d worked with wouldn’t have been so patient. I shrugged and said something wise (by accident, I’m sure) – I don’t remember what it was. He nodded and said that maybe I would work out as a teacher in Korea, after all. I remember at the time mostly being focused on the subtext: that he’d had doubts about me working out as a teacher in Korea. But looking back, it feels vaguely prophetic, given I lasted in the country for 11 years.

Okay, that was a digression. TLDR: I was sitting in the Telstra shop in Atherton for a long, long time. Then I got my new phone, and I started actually succeeding in communicating with people. I was helped very much by one of my mom’s doctors, who on her own time texted out my new number to all kinds of useful people and offices. So I’m grateful to “Dr Anj [Angela]”.

I learned that my mom was just starting her MRI down in Cairns. The weekend staff doctor (Mikaela) at Atherton Hospital was available to meet and I had a great talk with her, including getting a full list of my mom’s medications, their indications, various concerns, and expressing my worries about contravening my mom’s wishes in the event they wanted to do any kind of surgery on her hip.

In the end, the doctor was supportive of the idea that I drive directly down to Cairns Hospital and present myself to the doctors there and discuss with them the whole situation. So despite it being a 2 1/2 hour drive, I did that, and reached Cairns at around 2 PM – just in time to meet one of the residents at the “Transit Lounge” – an area for outpatient procedures at the Cairns Hospital, which is a behemoth of an institution, given it serves not just the City of Cairns (pop ~200,000) but the vast outlying regions of all of Far North Queensland (a region the size of Wyoming, with about the same population).

The doctor, and her supervising doctor, affirmed that they were declaring that the break in mom’s femur did NOT require surgery. “You’ve dodged an operation,” joked Dr Ahmed, with a smile. My mom became alarmed, because she’d forgotten there was an operation in need of dodging. So we calmed her down and said everything would be okay.

Then there was another bout of interminable waiting, while the powers-that-are turned the gears to get Ann transported back “up the hill” to Atherton Hospital. Ann several times forgot she was in Cairns, which probably is for the best, as she is opposed to the concept of Cairns as matter of deeply-held philosophical principle, and is unable to say the name of the city without venom. I’m not sure I understand the antipathy. She’s just not a city person, I think it what it comes down to.

So I waited with her, and made stupid jokes and observations, and let her look over my shoulder as I studied Duolingo’s Vietnamese, Korean, and Welsh on my phone. She mostly stayed in good spirits though she became quite angry when she announced she needed to pee, and the nurses all insisted that it was fine to pee into the “pad” (adult diaper). It’s undignified, I understand, but as a practical matter there is no way the thinly-stretched hospital staff can spend half an hour transporting a non-ambulatory patient to a restroom on demand. Ann was very grumpy about it. I tried to say she should look at it as a kind weird luxury – a “pampered” existence and all that. It’s a difficult thing. I remember similar struggles during my days in the ICU in 2013 in the wake of my tumor removal.

Once she was loaded into the ambulance, left too and drove back up the hill and to my mom’s house, just over 3 hours drive time on the twisty roads of the Kuranda road and the Tablelands. I got to the house at just after 9 pm. It had been very long day, mostly driving and waiting.

Today, being Sunday, there should be fewer obligations. I’ll go into Atherton and visit at the hospital, and hopefully meet up with a few of my mom’s long-suffering, supportive friends.

It was rainy and thunderstormy last night, but the dawn is cool and blue-skied, and wallabies are grazing around my mom’s driveway, and birds are making alarming jungle-noises in the trees.


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Caveat: To give… what?

It’s Saturday morning on the Atherton Tablelands, Far North Queensland. I need to provide an update.

After the long trip (40 hours travel time, Klawock to Atherton), I crashed last night around 8 pm (local time = 1 am Alaska time). I slept through to 2 am and woke up completely, but after killing some time reading I managed to sleep again from about 4 to 5. Now it’s 6 am and I’m going face this day. There was rain last night, and lightning in the clouds as I drove from Atherton up to Ravenshoe to my mom’s house.

Here’s a summary of the situation with my mom. She has the broken right shoulder, but they’ve also identified a possible bad break in her right femur. This is troubling mostly because if it’s serious and goes untreated, it could mean she really basically never regains mobility. They’re taking her down to Cairns today to do an MRI (no MRI at Atherton Hospital), and try to evaluate how bad it is and what if anything to do. If it’s severe, they want to press for surgery (inserting a pin), explaining that it is “palliative”. Although I understand, I also really want to respect my mom’s repeated and furious declarations of wishing for “NO interventions”. For my mom, even the MRI is really a step too far with respect to the boundaries she tried to set back when she was more coherent, and letting all this happen feels like a betrayal, but it’s very hard to resist the medical-industrial complex and their “of course it’s the right thing to do” approach to the medical ethics of any and all interventions.

At the same time, the threat of “never regaining mobility” is pretty scary – even Ann admitted that in talking last night. Mentally she’s more calm than I expect, but they’re giving her opiate painkillers and some kind of anti anxiety med (I think?). Anyway, I’d be calm too, probably. It’s clear, though, that her mental decline is real and substantial. She really reminded me of Arthur the way she was told repeatedly during the 2 hours I spent with her about the upcoming MRI appointment, only to deny having heard about it the next time it came up, and giving alarmed expressions.

She retains her sense of humor, and returns frequently to a notion of “giving” – though I can’t quite figure out what she means (giving what? to who?) but it feels like a kind of spiritual expression for her, and maybe groping through the fog for some idea of closure? I don’t quite know – her vocabulary is highly reduced and she has much difficulty expressing herself sometimes, though her level of understanding in any given moment is quite a bit higher than Arthur’s is.

Today, mom’s off to Cairns for this MRI thing, where my accompanying would be pretty pointless given the logtistics of it. So I’m going to focus on figuring out why my mobile phone roaming, which worked so well last time I was here, is absolutely failing me. I’m very upset about it but also absolutely clueless what I can do about it? How do I get customer service from AT&T while overseas when my phone isn’t working? I may end up buying a local pre-paid phone if I can, because this is not a situation where I want to be phoneless.


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Caveat: Just have to keep going and going

So my mother is in the hospital. She had two falls, one at home, where she was found by a home-care worker, and one after being transported by ambulance to the hospital.

The biggest issue is that, as I understand it, the hospital will not discharge her back to her home, saying that she needs to be in a care facility. Nobody disagrees, but setting up a care facility is apparently a difficult task. So I’m going to travel over there, on an unplanned visit, to try to work some things out – if that’s even possible.

I’ll leave Wednesday morning, and fly on 5 different airplanes to arrive at Cairns, Queensland (Klawock to Ketchikan to Seattle to LAX to Brisbane to Cairns). Then I’ll rent a car and drive up to Atherton where the hospital is, for a total travel time of about 40 hours.

I hadn’t planned to be absent for much of January – it leaves the gift store with some unfinished projects, but at least it’s in Jan and Kim’s capable hands.

Emotionally I’m not doing well – but actually, it’s not because of the issues with my mom, directly. Instead, it’s more because I simply have not had a break in far too long. Every time things get “crazy,” I tell myself that “next month” things will slow down and I’ll have a break. Instead, something comes up “next month” and I have to keep pushing hard. January had been set aside, in my mind, as a period to try to recharge a little bit, take some time off, even. Not happening.

I’ll post daily journal type stuff on the blog (with cross-posts to Mastodon), and on facebook (which, to be clear, I despise, but which I maintain in order to stay in touch with people who I care about, who essentially “live” on facebook).


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Caveat: Links #121

Here are some links I found interesting- with minimal comment.

An illustration from the internet.

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A quote.

“Asking you to give me equal rights implies that they are yours to give. Instead, I must demand that you stop trying to deny me the rights all people all people deserve.” – Elizabeth Peratrovich


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Caveat: Links #120

Here are some links I found interesting- with minimal comment.

An illustration from the internet.

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A quote.

“In any fundamentally evolution-driven system, diversity is the most important feature if you want that system to be resilient over time. So in the context of human society and its embeddedness in the wider ecosystem, diversity is the characteristic to be maximized: not just human genotypic diversity, but cultural diversity too.” – this was my own half-developed thought


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Caveat: A very Alaskan reason to get married

An elderly man (whom I know quite well) came in the store yesterday. He was shopping for an anniversary card for his wife. “Oh,” I said. “What day is your anniversary?”

“It’s today,” he admitted.

“Wow, you got married on the last day of the year. Why did you choose that day?” I asked.

“Well, we saved a whole bunch on taxes,” he answered.


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Caveat: Saint Jimmy

Jimmy Carter died. He was the president of my political awakening – I was in middle school during his presidency, and I transitioned from being merely an echo of my parents’ politics to starting to form my own opinions. For my parents, Carter was too ‘establishment,’ and too far right. My own opinions of that time leaned more libertarian, as they took shape – possibly under the influence of my uncle Arthur (for whom I’m now caretaker in his senescence).

Anyway, I’m not sure I really agree with the current hagiography. He was quite guilty – as any Democrat in his era – of playing “both sides” of race issues. There was no other way to get elected, in Georgia, at the time of his governorship. I’m not sure much has changed. Looking back, historically, I am also painfully unimpressed with how his administration handled the situation in South Korea – among many other foreign policy fiascoes. Arguably, decisions made by Carter’s national security team led directly to the Gwangju massacres of the democracy activists, who were protesting against the ruling dictatorship of the time. No, Carter was no saint.

That said, I came very close to meeting him. And I did meet his wife, Rosalynn – I had a fairly involved conversation with her. This was when I was living in Mexico City, in 1986. Jimmy and Rosalynn were visiting the refugee center where I volunteered, teaching English. These were refugees from Central America. I had individual friends among the refugees who had been imprisoned and tortured by US-backed governments and/or paramilitary groups – e.g. ‘contras‘ (depending on the country). The refugee center was run by the Mexico City Quaker community, so the Carters, in a ‘progressive, interfaith’ mode, visited. It was a way to score points, I imagine, in the opposition to Reagan’s wars in Central America. I missed meeting Jimmy because he was late catching up to his wife, and I had to leave because of something related to my job. But anyway, Rosalynn Carter is possibly the most famous person I’ve ever had a conversation with.


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Caveat: Links #116

Here are some links I found interesting- with minimal comment.

An illustration from the internet.

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A quote.

“Let the mind of men be blind to what is to be. May those who fear be permitted to hope.” – Lucian


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